The West Virginia Cancer Registry is subject to certification by the North American Association of Central Cancer Registries (NAACCR). Certification is based on timeliness, completeness, and data quality. WVCR was certified at the “silver” level for diagnosis years 1995 and 1996 and at the “gold” (highest) level for diagnosis years 1997 through 2015 (the most recent year for which certification results were available at the time of this writing). In addition, West Virginia Cancer Registry data meet the 24-month standards of the National Program of Cancer Registries.
Data provided by a facility or reporter may be provided back to that facility or reporter as a failsafe in the event of catastrophic data loss. However, ONLY data provided by the facility or reporter may be provided. Additional information provided by other sources may NOT be disclosed.
When a lawful reciprocal data sharing agreement exists, WVCR may provide identified data about another state or territory’s residents or tribal entity’s members diagnosed and/or treated in West Virginia back to the state/territory/tribal entity, which, in turn, is to provide WVCR with identified data on West Virginia residents.
A researcher can access identifiable data for patients in his/her study from whom a release of information is signed and provided to the WVCR after a research application is approved.